Tuesday, 21 June 2011
VENT
I really need to have a vent so im sorry........for those of you who dont know i have a physically disabled son who is 20 and wheelchair dependant he is also at university staying at halls with a full-time carer.......Yesterday we both went to look at a flat they have offered him in his home town....now this brand new flat is the bees knees it has all electric windows, sink, cooker at his level, shower room and electric front door with cctv...........brilliant flat and brilliant news hey................well here is the downfall...i wanna swear now!! social service are saying that his wont need a carer as much and dont think there will be enough money to provide him with a night time carer which he really needs..........say there is a fire or he drops things in the night that he needs....and not only that would they like to be left in a flat all alone knowing you cant call anyone!!! ive been crying most of the day.....she is coming out on friday i will update then......so sorry xx
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jen you have every right to be upset at this awful decision. I know how much you worry about Robbie, and how proud you have been of him going to Uni, and here are these people making decisions that would mean backward steps. Have they no hearts or even brains.
ReplyDeleteI hope you are able to convince them to see the light.
Vent all you like girl you have good reason to.
They have sh*t for brains! That is so cruel, no wonder you needed to vent.
ReplyDeleteI hope they reverse their thinking and keep his night carer too.
Hugs,
Sandie xx
You have every right to be furious. This is your space so feel free to vent all you like. You have a lot of friends here who would support you in your fight for what is right.
ReplyDeleteReally hope it all works out for the best Jen.
Hugs,
A x
Wipso just said exactly what I was thinking - she always does that!! Here if you need us Jen - we don't mind if you grumble and vent thats what we are here for. x Jo
ReplyDeleteJenny, sorry you have this worry about your son at present. Just make your case and emphasize that it is valuable progress for his independent life to move into this flat, BUT he would not be able to take advantage of it without an adequate level of support. Make the points about his safety and emotional well-being. (I am retired OT). Good luck with it.Keep calm but be assertive.
ReplyDeleteIt's so crazy - I have a disabled uncle and he didn't even get the adjustments he needed doing to his flat. It's ridiculous that you have to fight nearly every step of the way just to get the right care. I'm with the other ladies, vent all you like - we all back you up. Just hope they see sense on Friday - you have a really good vent at them!
ReplyDeleteThanks, im so worried about friday and not sure that we should go ahead now as if they change his care package thats would then mean he wouldnt be able to go back to uni! ;(
ReplyDeleteGood luck with the 'argument' come Friday. I'll be thinking of you. You have every right to feel this way. People in ivory towers really have no idea do they. Perhaps they'd care to walk two moons in YOUR moccasins and see what their plan would be then!! I'm feeling rather angry on your behalf [pity it's half a world away].
ReplyDeleteSo sorry you are going through this Jen.We will be thinking of you for Friday..So much worry..
ReplyDeleteLove
Judy
My thoughts are with you here. It must be so ffrustrating to deal with the bureaucracy of how it all works. xox Corrine
ReplyDeleteOne would think that the people in the position to make these decisions would have some experience with disabilities and some compassion. No wonder you are upset! Hoping things all work out to your son's benefit.
ReplyDeletebloody hell Jen if it doesn't rain it pours for you ! I wish i was there to come with you back you up. I feel so ticked off for you some of these people have no idea how many people their decisions effect. I will keep my fingers and toes crossed that it all goes your way ! stay strong and give em what for !!! x
ReplyDeleteSo sorry to hear this, Jen. Will be thinking of you and hoping for good news.
ReplyDeleteoh Jen, i hope they change their mind. good luck ....
ReplyDeleteVent away Jen, you certainly need too ... and good luck tomorrow xx
ReplyDeleteYou seem to be dealing with one blow after another lately ... just wanted to let you know I am thinking of yuo - hugs, Lisa
Jen... my thoughts are with you through yet another struggle... stick your ground and give them all the concerns you have, and let them know how the quality of life will be affected and why his education is so important... easier for us to say than to deal with, but know we are all thinking of you. Hugs.
ReplyDeleteJennie, I hope so much with you that it will come to a good end.
ReplyDeleteAnneliese
It is all about saving money now, isn't it :-(
ReplyDeleteYour son has done so well! You must be so proud :-)
I can only guess how many fights you have been through over the years, Jennie, and it looks like you have another one on your hands now.
Good luck!
I am soooooooooooo sorry to read this...by now as it is Friday u will have talked to social worker. I have had my fingers crossed all day for you.xxlynda
ReplyDelete